The Stargardt’s Summit

The Stargardt’s Summit aims to share the latest resources and information with the Stargardt’s community. Join us on February 29, 2024 for the free virtual summit to learn about the newest research, explore adaptive living resources, hear impactful patient stories, and connect with others going through a similar journey!

The summit will have three panels:

  • Patient Panel – Individuals living with Stargardt’s will share their personal experiences.
  • Medical/Research Panel – Medical professionals will present the latest research on Stargardt’s and the biological basis of the disease.
  • Accessibility and Adaptive Strategies Panel – Assistive technology experts will share tools and strategies to navigate the world with Stargardt’s.

This year’s event is hosted by The Carroll Center for the Blind, in partnership with Foundation Fighting Blindness, Prevent Blindness, and The Blind Life.

Event Partners:

Carroll Center for the Blind Logo
Foundation Fighting Blindness Logo
Prevent Blindness Logo
The Blind Life Logo

Sponsored By:

Alkeus Pharmaceuticals Logo

Event Details

Date: Thursday, February 29, 2024

Time: 1:00 – 5:00 PM ET

Location: Zoom

Cost: Free

Program Overview

1:00 – 1:05 PM | Welcome from Greg Donnelly, CEO and President of The Carroll Center for the Blind

1:05 – 1:15 PM | Martha Steele, member of the Board of Directors for The Carroll Center for the Blind and Foundation Fighting Blindness and MC of the event, will share a few words about the day’s program.

1:15 – 1:30 PM | Keynote Speaker: Bradford Manning, Two Blind Brothers

1:30 PM – 2:15 PM | Patient Panel

Kira Baldonado, Vice President of Public Health and Policy at Prevent Blindness, will guide a conversation with panelists Chloé Duplessis, Charlie Collins, and Jack Duffy-Protentis who will share their personal experiences with Stargardt’s.

2:15 – 2:25 PM | Break

2:25 – 3:10 PM | Medical/Research Panel

Ben Shaberman, Vice President of Science Communications at Foundation Fighting Blindness, will guide a conversation with panelists Dr. Jason Comander M.D., Dr. Peter Zhao M.D, and Dr. Abigail Jensen Ph.D on the latest Stargardt’s research and the biological basis of the disease.

3:10 – 3:20 PM | Break

3:20 – 4:05 PM | Accessibility & Adaptive Strategies Panel

Tina Laffer, Director of Outreach and Community Engagement at The Carroll Center for the Blind, will guide a conversation with panelists Sam Seavey and Bob McGillivray to explore the latest tools and strategies to navigate the world with Stargardt’s.

4:05 – 4:15 PM | Presentation & Program Wrap-up

4:15 – 5:00 PM | Attendees will transition to a Q&A session led by representatives of all partner organizations for further resource exploration.

Contact Information

If you have any questions about the Stargardt’s Summit or need assistance with registration, please contact Michelle Georges via email or call (617) 969-6200 x 237.